heathermason Feb 61 minI am Claire, and I have Fabry DiseaseOn Day 6 of rare disease awareness, we are sharing Claire's story. Claire's diagnosis story is a protracted and frightening one, partly...
heathermason Feb 51 minI am Benjamin, and I have Pitt-Hopkins SyndromeOn Day 5 of rare disease awareness we are sharing Benjamin's story. Benjamin lives in the UK with his twin sister, elder sister and his...