I am Landry, I have CHAMP1 disorder.

We have reached day 9 of our rare disease initiative. Today, Landry's mum, Lindsay, shares their journey of being diagnosed and living with a genetic disorder that was only discovered in 2015, and so far has only 300 individuals globally.

Lindsay added a very positive statement that shows we are making social progress.

"I am amazed at the number of parents who ask my advice on talking to their children about disabilities and their affected peers".

Please share her story, it may just help one person looking for answers. Be part of someone's solution.

#raredisease #RareDiseaseDay #CHAMP1 #medcomms

9. I am Landry (CHAMP-1).docx

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