On the 14th day of our rare disease initiative, I have the privilege to present David, who, at 36 years of age, is the oldest person living with Hunter Syndrome in the UK. When David was diagnosed, there were limited treatments available for Hunter Syndrome, none of which slowed the progression of the disease. Since 2006, a therapy has been available that replaces the enzyme deficient in Hunter Syndrome. This enzyme replacement therapy (ERT) slows disease progression, and people like David are able to live longer than they would have a few years ago.
Read the story of David below. Please share; it may just help one person looking for answers. Be part of someone's solution.
Disclaimer: This initiative is not sponsored. Coufetery comms has no conflict of interest with any of the publications or products mentioned in these articles. All references are freely available through the links provided.
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