Today, as we are half way through our rare disease awareness initiative, a little reminder of why we are doing this. The build up to Rare Disease Day 2024. Only 14 days to go.
So today we celebrate International Angelman Day.
Unfortunately, I was not able to find a family available to contribute their story in time. But, it is important all the same to learn more about Angelman Syndrome and raise awareness of their special day.
Please share; it may just help one person looking for answers. Be part of someone's solution.
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