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I am Benjamin, and I have Pitt-Hopkins Syndrome

  • heathermason
  • Feb 5, 2024
  • 1 min read

On Day 5 of rare disease awareness we are sharing Benjamin's story. Benjamin lives in the UK with his twin sister, elder sister and his parents. Benjamin has Pitt-Hopkins Syndrome (PTHS). I must admit, even as a medical writer, claiming to know about rare diseases, I had not heard of PTHS. Read on to learn more about Benjamin and PTHS.





 
 
 

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