Coufetery Comms

On day 3 of the rare disease awareness initiative, I would like to introduce you to Mabel. Now, Mabel and I go way back. She was at...

Amelia and Ollie are brother and sister, living with their family in the UK. They both have a neurodegenerative disorder called Batten...

Today is the first day in my initiative to raise awareness for Rare Disease Day, coming up on the 29th February. I will post something...

The Batten Disease community are heartbroken to learn that the biotech company REGENXBIO have decided to stop further enrollment and...

Williams Syndrome. I had never heard of this until my son was at nursery with a little girl called Mabel who has the condition. I...

Updates in HER2+ breast cancer: adjuvant therapies, early-stage data, and tumour heterogeneity HER2 status has important implications for...

1- Measures of clinical response to breast cancer therapies need to be updated in line with the advances in improved drug treatments. 2-...

Rare Disease Day 2023. #showyourstripes ! One in seventeen of us have a rare disease. Not so rare afterall. A recent survey of...

https://battendiseasenews.com/2021/07/08/care-beyond-diagnosis-clinical-guidelines-rare-disease/ Raising awareness of rare diseases...

Another upcoming webinar hosted by the European Medical Writers Association (EMWA) Thursday 22nd July 2021, 14:00 CET The role of Quality...

A fellow medical writer has set up a project to get pens to children across the world. Who could believe that in 2021, there are still...

UPCOMING EMWA WEBINAR! 24-Jun-2021 14h CEST. EndNote and its functions for Medical Writers by Peter Masurat, Alfasoft team (Company led...

Shameful disparities highlighted by the Director General of the WHO. In a press briefing today, Dr Tedros Adhanom Ghebreyesus reminded us...

We have seen many examples of huge resilience, compassion and community during the COVID-19 pandemic. Now that some nations are beginning...

Join the European Medical Writers Association free-to-all webinar on Thursday 29th August at 2.30pm (CEST), 1.30pm (BST). Have you ever...

The British Standards Institution (BSI) was informed by the Medicines and Healthcare products Regulatory Agency (MHRA) that its UK...

Vaccine hesitancy has been identified by the WHO as one of the top 10 threats to global health. Trust in vaccine safety is a huge...

TODAY is #MedComms day 12th June. This is what my day looks like today. What’s everyone else up to? Further promote the ‘Face Cancer’...

World Congenital Disorders of Glycosylation (CDG) awareness day 16th May 2019. Why the 16th May? It is the birthday of Pf Jaeken's, the...

John is an old school friend of mine. In 2017 he was diagnosed with an aggressive spindle cell sarcoma in his maxillary sinus. Since his...