Guidelines for Diseases Like Batten Are Small Nonprofit’s Guiding Goal.

https://battendiseasenews.com/2021/07/08/care-beyond-diagnosis-clinical-guidelines-rare-disease/

Raising awareness of rare diseases globally is a tough challenge to undertake. Care Beyond Diagnosis continue to go from strength to strength in their mission to advocate for earlier diagnosis and better care for patients and families touched by a rare disease. The good that they are doing for the rare disease population extends from high- to low-income countries. Developing care and treatment guidelines for rare diseases will surely be just the beginning for this non-profit organisation.