I am Evana, and I have Ehlers-Danlos Syndrome.

Day 4 of the rare disease awareness initiative, I would like to introduce you to Evana. who lives in South Korea and has Ehlers-Danlos syndrome (EDS). We chose today to share her story, as it is her birthday. HAPPY BIRTHDAY Evana!!!. Her story is quite shocking. Healthcare professionals thought that the bruises and lesions on Evana's body were due to child abuse, rather than looking further into all the symptoms that she had. Read her very honest account of living with EDS, and the terrible fight that her mother had to find a diagnosis for her.

4. I am Evana (Ehlers Danlos Syndrome).docx

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