We are Amelia and Ollie

Amelia and Ollie are brother and sister, living with their family in the UK. They both have a neurodegenerative disorder called Batten disease. Their mum Lucy has kindly given us a very honest summary of their journey from diagnosis, to the fight for treatment, and the impact that this devastating disease has on their family. But, in the sorrow that this disease causes, also, you can see the joy that these two beautiful children bring. Love life !

Amelia and Ollie's story can be followed on Instagram. All links, and where you can find more information on Batten disease, and their fundraising website are given at the end of the article.

I would like to sincerely thank Lucy for taking time out of her frantic schedule, to write their story, and her very candid look into their world.

2. We are Amelia and Ollie (Batten disease).docx

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