Coufetery Comms

It's late in the day, but today has been World Rare Disease Day. I wasn't able to repeat the awareness campaign that I undertook last...

Today was a good day. I received the live link to a manuscript that I have been project managing. This one was a labour of love,...

To celebrate Batten Disease Awareness Day 2024, we are wearing orange. Our family would like to show support to all families touched by...

This day is dedicated to raising awareness of mucopolysaccharidoses (MPS) and related conditions. Image generated by AI using CANVA MPS...

Raquel Billiones, PhD and myself have been invited to moderate an Expert Discussion Group, at the upcoming European Medical Writers...

Today on day 18 of our rare disease awareness initiative, we have another birthday. HAPPY 3rd Birthday Mias!! Mias's mum Carien,...

On the 14th day of our rare disease initiative, I have the privilege to present David, who, at 36 years of age, is the oldest person...

On day 12 of our rare disease initiative, I have made a change to the format, to cover something that I feel completely necessary to...

Today is day 10 of our rare disease initiative. Today, Elisia's mum, Claire shares their journey of another ultra-rare condition, that...

We have reached day 9 of our rare disease initiative. Today, Landry's mum, Lindsay, shares their journey of being diagnosed and living...

Williams Syndrome. I had never heard of this until my son was at nursery with a little girl called Mabel who has the condition. I...