Coufetery Comms

It's late in the day, but today has been World Rare Disease Day. I wasn't able to repeat the awareness campaign that I undertook last...

Today on day 18 of our rare disease awareness initiative, we have another birthday. HAPPY 3rd Birthday Mias!! Mias's mum Carien,...

On the 14th day of our rare disease initiative, I have the privilege to present David, who, at 36 years of age, is the oldest person...

On day 12 of our rare disease initiative, I have made a change to the format, to cover something that I feel completely necessary to...

Today is day 11 of our rare disease initiative, and I had the absolute privilege of talking to Nev, the father of Caoimhe, who has CAMK2....

Today is day 10 of our rare disease initiative. Today, Elisia's mum, Claire shares their journey of another ultra-rare condition, that...

We have reached day 9 of our rare disease initiative. Today, Landry's mum, Lindsay, shares their journey of being diagnosed and living...

Rare Disease Day 2023. #showyourstripes ! One in seventeen of us have a rare disease. Not so rare afterall. A recent survey of...