Is accessibility really that bad?
💡 This weekend, I have had what one would call a lightbulb moment and a new raison d'être. It isn't anything that hasn't been discussed...
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heathermason
Jun 181 min read
Use of β-Hydroxybutyrate salts in children with multiple acyl-CoA dehydrogenase or pyruvate dehydrogenase deficiency
Today was a good day. I received the live link to a manuscript that I have been project managing. This one was a labour of love,...
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heathermason
May 132 min read
International ME Awareness Week
Myalgic Encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), is thought to affect between 0.2-0.4% of the UK population....
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heathermason
Apr 251 min read
How can a medical writer support the rare disease community?
Raquel Billiones, PhD and myself have been invited to moderate an Expert Discussion Group, at the upcoming European Medical Writers...
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heathermason
Apr 31 min read
EMWA Spring conference is nearly upon us.
The European Medical Writers Association (EMWA) 2024 Spring conference is almost upon us. Raquel Billiones and I will be moderating the...
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heathermason
Feb 121 min read
Syndromes Without a Name (SWAN)
On day 12 of our rare disease initiative, I have made a change to the format, to cover something that I feel completely necessary to...
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heathermason
Feb 111 min read
I am Caoimhe, I have CAMK2.
Today is day 11 of our rare disease initiative, and I had the absolute privilege of talking to Nev, the father of Caoimhe, who has CAMK2....
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heathermason
Feb 101 min read
I am Elisia, I have 5q14.3 (MEF2C) deletion.
Today is day 10 of our rare disease initiative. Today, Elisia's mum, Claire shares their journey of another ultra-rare condition, that...
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heathermason
Feb 91 min read
I am Landry, I have CHAMP1 disorder.
We have reached day 9 of our rare disease initiative. Today, Landry's mum, Lindsay, shares their journey of being diagnosed and living...
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heathermason
Jun 12, 20191 min read
MedComms Day 12th June TODAY!!!
TODAY is #MedComms day 12th June. This is what my day looks like today. What’s everyone else up to? Further promote the ‘Face Cancer’...
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heathermason
Jan 28, 20191 min read
Emerging antibiotic-resistant disease able to jump from pigs to humans.
https://www.plymouth.ac.uk/news/university-researchers-to-tackle-drug-resistant-disease-that-jumps-from-pigs-to-humans #vaccines...
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